Migraine Chronicles: Description and Confession

…the pain that gnaws me takes no rest.
(Job 30:17b)

Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance…
(Romans 5:3)

To kick off a discussion about migraine, I’d like to begin by making sure we are all on the same page by stating for the record that a migraine is not just a headache. It is a full-body neurological experience of which the headache pain is only the climax.

A true migraine can (but does not always) involve up to four phases: the prodrome which can occur hours or even days before; the aura which afflicts about 20-25% of migraine sufferers and usually immediately precedes the headache phase; the migraine attack which involves intense, one-sided headache pain accompanied by sensitivity to lights, sounds, smells, and/or nausea and vomiting; and the postdrome, affectionately known to many migraine sufferers as the “migraine hangover.”

And to be honest, there are a host of additional symptoms that sometimes occur ranging from visual disturbances to difficulties in speech or cognition; a list which can become disturbingly varied and long. Suffice to say that calling a migraine a headache does not quite do the experience justice.

Chronic migraine is another thing altogether. Typically, it begins with distinct episodes of migraine that, over time, progress to a relentless , one-sided headache with the potential to morph into and out of a full-blown migraine episode without warning.

From my personal experience with chronic migraine, the entire migraine sequence can become one jumbled mess, and some months are better than others with or without medication. It is from this that I can feel empathy for Job when he said, ” … the pain that gnaws at me takes no rest,” because I have been there.

How did it come to this? Hard to say. The best educated guess I have heard is that I sustained some nerve damage during a bout of viral meningitis back in 2004. Perhaps it did not help matters much that I’m a bit prone to push through pain and so was not hospitalized until the third day – and I mean three days of being unable to sleep for the pain in my head and unable to hold down so much as a tiny trickle of water from a medicine dropper.

Yeah, I know. Not too bright. But sometimes you just do what you have to do.

And today, I have to confess.

I am just coming out of two very dark weeks beginning with a particularly hideous 72-hour prodrome followed by about a 10-11 day stretch of various levels of migraine ranging from “I am functional but I may take 2 hours for a 20-minute grocery run and may wear sunglasses indoors,” to “Uncle.”

And because our enemy does like to kick us when we are down, he really laid on the temptation – and I fell for it. I freely confess that I spent an embarrassing number of days in a full-on pity party. It was pathetic, actually, and whether it can be argued that I had cause or not, sin is still sin and I must accept full responsibility for my complicity.

While my husband and I have prayed for and believe that God is able to heal me of this, we also realize that He will only do so if it serves His purposes. Sometimes I lose sight of this. In fact, I sometimes lose sight of Him and fix my eyes only on my problems, as I did last week.

That’s where today’s second verse comes in. Even though there may be pain in life, pain is not always bad. Often, God has lessons for us to learn through the pain.

What I was reminded of first and foremost was to look “to Jesus, the Founder and Perfecter of my faith, Who for the glory that was set before Him endured the cross, despising the shame,” and to “consider Him who endured from sinners such hostility against Himself so that you may not grow weary or fainthearted” (see Hebrews 12:2-3).

Here’s the thing that my little excursion into sinful self-focus reminded me: He did not deserve to suffer. I do.

And so, today I consider Him and bow myself in reverence and humility, rejoicing that while the father of lies desires to use my pain to drive me into sin, my Father can use the same tool to bring about contemplation of His grace.

And when I contemplate the goodness and meekness of my King, I find that I can rejoice in my suffering because He has suffered, too. Even in pain, I am never alone.

I’m interested… what helps you cope with chronic pain?

 

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15 thoughts on “Migraine Chronicles: Description and Confession

  1. Really good definitions. I have a second mentoring session with a headache nurse from Children’s Mercy Hospital for my middle school students with migraines. Did you know that about 6% of students with headaches have actually migraines?? That’s hugh! I hope you’re feeling better. Thanks for doing this. Just had my first breakthru today after starting the new medication and took the sumatriptan.

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    1. I did know that, but only because a good friend had hers start in middle school, and her daughter started having migraines when she was 14. 😦 Hers are horrible, and they have actually had to pull her out of school and homeschool as well as they can (both parents work). She’s actually one of the reasons I am doing this… I just never thought to do it publicly until you mentioned it, so thank you very much for the impetus. So glad you had a breakthrough! I have been headache-free for 2 days now, so pretty good here. I can’t take any of the triptans anymore after a pretty scary heart palpitation episode, so I’m having to find other ways to cope. I have been tempted to take it anyway sometimes, though!

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      1. Unfortunately, “breakthru” meant a migraine symptoms that broke through the medication barrier. Blah. Better today. Forgive me if I’m repeating, but I feel like a walking apothecary! Just a thought: don’t add stress to your schedule (and life!) if every Monday is too much. Even if you just add a “category” on your side you can add to whenever, people can click on it. Just don’t add stress to yourself!!

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      2. Oh, oops! Well, than I am not happy about the breakthrough. 😦 I hear you, though. And thanks! Lol, I know stress isn’t a good thing to add for sure. I just “plan” to do it on Mondays (maybe not EVERY Monday), but no promises for sure. 😉 But the writing is cathartic for me, so it can be helpful.

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  2. I had a friend that would get “complete” migraines. The symptoms can mimic stroke. It would scare her terribly each and every time.

    I have had to severely limit my screen time lately in an attempt to reduce headache pain. I hope you have some resolution in some form!

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    1. I’m sure that can be scary, especially if she gets paralysis with it! I get hit hard in the speech department – slurring, mixing up words, or losing words altogether. It’s very frustrating, but good because it forces me to slow down. Although… I will say it can be embarrassing in certain circumstances! Glad you have found something that helps!

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  3. I keep an array of triptans in my purse and take them at the first sign of a migraine – I get about 16 migraines a month so I’m taking well over the prescribed limit for triptans and I too have had heart palpitations but the migraine pain is just so much worse. I’ve tried just about every preventative med out there (topamax, beta blockers, amytriptaline, magnesium, etc). Hope you find relief!

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    1. Oh wow, so sorry to hear that! You’re definitely in the chronic range. I’m currently trying a ketogenic diet and hoping that whatever it is that helps eplilepsy will help migrine. Even though I’ve had some funky reactions to triptans, I’m seriously tempted to take them again. Hope you find something, too!

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