M.E. and Me

Come and hear, all you who fear God, 
and I will tell what he has done for my soul. 
I cried to him with my mouth, 
and high praise was on my tongue. 
If I had cherished iniquity in my heart, 
the Lord would not have listened. 
But truly God has listened; 
he has attended to the voice of my prayer.
(Psalm 66:16-19)

Ever get what you asked for but it looked so different from what you imagined that it took you some time to realize it? This is one of my answered prayers, albeit an answer I’ve tried to deny…

I’m starting to accumulate quite a number of letters beside my name. Heather Davis; IBS, ME/CFS… It’s too bad they are all diagnoses instead of degrees. C’est la vie!

The last one, ME/CFS, has actually been on my chart for several years now. It stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It’s also known as Systemic Exercise Intolerance Disease or Post-Viral Fatigue Syndrome, but most people just call it Chronic Fatigue Syndrome. CFS for short.

It’s a diagnosis I refused to submit to for years, mainly because it always seemed like a description rather than a diagnosis. I suppose that’s why some doctors are switching to the other, more medical-sounding names. But of course, once a thing has been around in the public consciousness for a time, it’s difficult to change it.

For me, it is a humbling diagnosis. However, now that my migraines have been under control for several months, it’s become extremely clear there’s another issue behind the insane bouts of fatigue that have plagued me for much of my adulthood.

A primary reason I’ve been refusing to accept this diagnosis is… well, if I’m honest, it’s pride. CFS hurts my pride.

You see, a hallmark of CFS is what the docs call Post-Exertional Malaise, which basically means if I work out too hard or even overextend what little grey matter migraine has left to me, I crash.

And for this one-time fitness nut, that’s a bit hard to swallow.

Before I had children, I was a gym rat. When children came, I found other ways to work out at home with freeweights, video workouts, you name it. In my thirties, I hit a personal fitness best after going through the P90-X program.

Ever since migraines came in and stole the body I worked so hard to attain, I’ve planned on regaining it; especially after a friend celebrated her 50th by sporting a STUNNING physique! I wanted to rise to the challenge she offered.

A few years ago, I set my mind to accomplish this. I’m in my forties, so I stared slow. After walking for a bit, maybe a few days of light weights, I decided the time had come to ramp things up. In the past, increased intensity brought increased energy.

Not anymore. Instead, I couldn’t wake up the next day. I crashed, not for a day but more like a week.

Thinking it was a fluke, I tried again. And again. And a sad number of “agains” until I had to realize something wasn’t right.

It just isn’t normal to feel like you have a case of the flu that comes and goes, getting worse every time you exercise vigorously! But it is normal for CFS. Hurrah.

So, friends, there’s a bit of an update. It keeps me from ever catching up, but I’m trying to learn to live within new limits. Unfortunately for me, I’m a slow learner AND a terrible patient (according to my husband – pray for him!).

And I can’t complain. Honestly. After all, this is an answer to my own prayer.

Admittedly, God’s answer isn’t playing out as I imagined, but years ago I did ask Him to strip away every single thing that distracted me from Him.

Apparently being uber-fit was one of those things.

So today, I give thanks to God who truly does answer all our prayers and give us everything we need. Which is Himself, by the way. He is all I really need. And anything I need to endure to get closer to Him is worth it.

Even pain. Even CFS.

Whom have I in heaven but you? 
And there is nothing on earth that I desire 
besides you. 
My flesh and my heart may fail, 
but God is the strength of my heart 
and my portion forever.
(Psalms 73:25-26)

When God Speaks

Thus did Moses; as the LORD commanded him, so he did.

Numbers 17:11

One complaint I’ve heard among unbelievers – including yours truly in the years before God got through to my stubborn heart -is that prayer doesn’t “work.”

I confess I only have my own pre-Christ experience to draw from when I’m breaking that phrase apart. However, what I meant at the time (and what I think most unbelievers mean today) is that their prayers do not achieve the results they want.

Of course, if every prayer whispered or shouted resulted in a concrete and predictable outcome, prayer would merely be the coinage for the vending machine on high. But that’s a rant for another day, perhaps.

My prayer habits after nearly two decades of following Christ are markedly different then the demands I haughtily tossed at the Most High back in my arrogant youth. During those days, I evidently thought that I, the creation, had some inalienable right to order my Creator around. Talk about role reversal!

It can be argued that Moses made his share of bold and unseemly comments and requests. Especially for a person who had witnessed several mind-boggling displays of power, the guy had a bit of steel in him when it came to talking with the Lord of Hosts.

If you will treat me like this, kill me at once, if I find favor in your sight, that I may not see my wretchedness.

Numbers 11:15

Read Exodus and Numbers. There are plenty more. The intriguing thing is, despite Moses’s alarming audacity, God grants a great many of his petitions!

For me on this, my anybody’s-guessth time through the Bible, a refrain of sorts has captured my attention. It always begins with, “The Lord spoke to Moses, saying…” and often ends with a variation on, “…Moses did as the Lord commanded him.”

Another way of putting it is the book is full of God’s instruction and Moses’ obedience.

When I think about it in these terms, what I called “prayer” in my unbelieving days – those imperious attempts at imposing my will upon God’s – were highly ignorable. Not because they were bold or demanding, but because there wasn’t a single atom of obedience tied up in them.

Though his start may have been a trifle reluctant, Moses did spend a good portion of his life obeying God. Even then, his disobedience was addressed and dealt with by God. Sin is always serious even if it is seldom.

So when the Lord speaks to us, do we listen and obey? Or are we more apt to filter the words of God, discarding the uncomfortable bits and keeping only the attractive and cozy ones?

If as the Lord commanded does not often appear in the refrain of our lives, why would we expect any of our requests to be granted? And if we aren’t hearing from the Lord at all, we might want to check our obedience and cooperation levels as well.

He is, after all, God. King.Creator. Above all things, He is to be reverenced and obeyed.

In His Time

For everyone who asks receives, and the one who seeks finds, and to the one who knocks it will be opened.
(Luke 11:10)

For years, a friend and I met weekly at 5:30 am and prayed. We prayed for revival, for for our families, for our churches, for our nation. To be honest, there wasn’t much we left out, and we prayed with open Bibles, starting our sessions off with Scripture and peppering it throughout as the Holy Spirit brought it to mind.

Of the many requests we lifted up, a specific one was on my mind today. But before I tell you that, let me back up a bit to the beginning of this school year.

If you’ve been patient enough to keep up with my ramblings for long, you’ll know that this year marked the first that I did not home school all three kids.  Because of the fact that I had to drive the older kids to their school 30 minutes away, I had to disband my little prayer group. The time just didn’t work out anymore. In fact, two hours on the road each day with squeezing in 7th grade academic and extra curricular activities… well, let’s just say that the time didn’t work out for much of anything.

SpecialNeeds022But for years, one of the many requests we continually brought to the Lord was for
provision for renovations to my friend’s house to accommodate their daughter who has spina bifida. But that kind of renovation is costly and was far out of their budget.

In a brief aside, let me tell you that this family has been through it. Besides the spina bifida and other special needs in one daughter, they also have 3 other children – and the youngest had cancer a few years ago when she was  only two. It’s been an unbelievably long and difficult road for them.

But back to the end of our prayer meetings. . .

This school year was rough on me. Not only was I in a bit of mourning over certain home school plans I had, I was also dealing with an unexpected exacerbation of migraines, thyroid issues, unbelievable fatigue, typical teenager-y stuff, and a seventh grade daughter still home schooling (and after managing my third seventh grader in home school, I will say it is not my favorite age or stage of life).

Oh, and my own stage of life issues. As if the migraine-fatigue isn’t enough…

Basically, by the time the school year was nearing the half-way point, I was over it. All of it. I was frustrated with God and I let Him know. I complained to God that He was not answering my prayers (which, by the way, were more along the lines of please help me with migraines so I can function or help my kids to love God and each other prayers, not I would really like a manicure prayers). I reminded God of the promise I began this post with among others. In short, I had a temper tantrum and pouted.

Then today…

Things are getting better. I’ve had my sulk and moved on, and my Father is so patient with me. He has been reminding me of, well of many things. Some of them I share here as time allows. Others will probably find their way here or into an article somewhere eventually.  But those are stories for another time.

Today at my friend’s house, there were plumbers and HVAC guys doing some work, and another man came to measure the special need child’s reach from her wheelchair in order to begin installing a shower with a movable head and a shower chair. Once done, she can begin to become more independent in her hygiene, which is a pretty important detail for a middle school aged girl.

The renovations are underway. God is providing, just as we had asked Him to do so many times, and He is providing through a ministry known as Tucker’s House. I was so excited for her, but I was humbled by my impatience as well.

Just talking about it reminded me that God does hear our prayers. He does give us what we need. He does provide. He just doesn’t always do it according to our timeline. 

Oh, and guess what? Now that my son has his license and we were able to acquire a vehicle, Lord willing, we will be able to start our prayer meetings again.

Return, O my soul, to your rest; for the LORD has dealt bountifully with you.
Psalms 116:7